Archive | Advocacy

Meet Your Metro Atlanta Advocates: “Team Georgia” Takes Congress By Storm

On February 26 – 28, more than 200 advocates from 43 states attended the 2017 Parkinson’s Policy Forum in Washington, D.C., hosted by the Michael J. Fox Foundation (MJFF), uniting the Parkinson’s community to learn about, discuss and take action on pressing policy issues related to Parkinson’s research, drug development and access to health care.Read More »

News From the Front: Key Takeaways from the World Parkinson’s Congress, Part II (PT and Exercise: The “PATH” Forward)

The World Parkinson’s Congress brings together Parkinson’s patients, caregivers, clinicians, researchers and advocates from all over the world every three years to update the community on the latest developments in research and living well with the disease and to inspire us all to keep fighting. The Fourth WPC was held in Portland, Oregon on SeptemberRead More »

News From the Front: Key Takeaways from the World Parkinson’s Congress, Part I (Diet, Exercise & Supplements)

The World Parkinson’s Congress brings together Parkinson’s patients, caregivers, clinicians, researchers and advocates  from all over the world every three years to update the community on the latest developments in research and living well with the disease and to inspire us all to keep fighting. The Fourth WPC was held in Portland, Oregon on  September 21Read More »

From Apathy to Advocate: My Radio Interview with National Parkinson Foundation President Joyce Oberdorf on Health South Connect

The National Parkinson Foundation leadership was in Atlanta recently to host their Centers of Excellence Leadership Conference, and I was honored to join their President, Joyce Oberdorf, for an interview with CW Hall and Diana Keough on their Health South Connect show. Click on the following link to listen to the full interview, which delvesRead More »

A Thought for Veteran’s Day: Participation in Clinical Trials Is Another Way to Serve

A couple of weeks ago I was asked to sit on a panel to discuss participation in clinical research, and one of the questions posed to us was: “Why do you participate in clinical trials?” Fortunately, the panelists were provided the questions weeks in advance, so I had the opportunity to give the question someRead More »

The Grass Roots Campaign Starts Today: Sign Our Petition To Focus Neurologists on Exercise, PT, Support Groups and Clinical Trials

Our mission in creating PD Gladiators was to focus the attention of people with Parkinson’s disease and the  medical community on the role of exercise in slowing the progression of Parkinson’s disease and to make community-based exercise programs available to people with Parkinson’s disease and their care partners. We hope that by demonstrating the value of vigorous exercise andRead More »

Guest Post By Professor Sharona Hoffman: On Receiving A Parkinson’s Disease Diagnosis

Sharona Hoffman is the Edgar A. Hahn Professor of Law, Professor of Bioethics, and Co-Director of the Law-Medicine Center at Case Western Reserve University School of Law in Cleveland. She is currently on sabbatical as a visiting scholar at the Emory University School of Law and at the Centers for Disease Control. She has published articlesRead More »

If We Build It, Will They Come? Part II

In Part I of this post I suggested that the Parkinson’s community needs to build an exercise infrastructure in order to coax the secluded majority of people with Parkinson’s to join the community and participate in exercise programs, physical therapy, support groups and clinical trials. But it’s important to reach newly-diagnosed patients early because we’veRead More »

If We Build It, Will They Come? Part I

Ellie and I attended the Southeastern Parkinson’s Conference hosted by the National Parkinson’s Foundation in August, and for the second year in a row we left inspired. The theme of the conference was Parkinson’s advocacy, and we were encouraged by excellent speakers from the Parkinson’s Action Network to get involved in legislative advocacy and byRead More »

A Call To Action: We Need To Inform Our Neurologists About The Latest Exercise Research

With about 1,200 journal articles published annually on Parkinson’s disease alone, it’s impossible for practicing neurologists to stay abreast of all developments in the treatment of PD. However, recent research findings regarding the effect of vigorous exercise on PD symptoms are so compelling as to warrant patients calling their neurologists’ attention to them and urging themRead More »